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News : Cystic Fibrosis Autumn Ball raising money for CF Trust

Cystic Fibrosis Autumn Ball raising money for CF Trust

img15After the astounding success of the inaugural Cystic Fibrosis Autumn Ball held in October 2012 which was attended by 370 guests and raised over £30,700.00 for Cystic Fibrosis (CF) charities, Debbie Packer, from Whiteley, has joined forces with Danielle Bull, from Southampton to organise the next Cystic Fibrosis Autumn Ball.

The event is being held to raise money and awareness for Cystic Fibrosis, the UK’s most common life-shortening inherited condition. The condition affects the internal organs, especially the lungs and digestive system. Sufferers usually look healthy; however they are far from that. The lungs are constantly infected causing long term damage and as a result, their lungs become less and less capable of working effectively, therefore breathing is a real struggle. Eventually oxygen is required and then a lung transplant is the only way to prolong a sufferer’s life.The Black Tie Ball is being held on Saturday 18th October 2014 at the Concorde Club, Southampton. Guests will be wined and dined and will enjoy entertainment from Rob Lamberti as George Michael as well as the glamorous electric string trio, Cordelectra. There will also be a casino and fun photobooth at the event as well as a fully packed raffle and auction.

There is no cure and only half of those with CF can expect to reach their 40th birthday ­ many sufferers do not even reach the age of 20. Organiser, Debbie Packer, who is 26, suffers with the condition and is only too aware of her short life expectancy as she has lost many friends all under the age of 30 to CF. Her lungs generally function between 30% and 35% and she also carries out a demanding treatment regime for hours every day just to try to prolong her life expectancy as well as numerous long hospital admissions each year. Danielle Bull, also organising the ball, has a brother who suffers from CF and spends months each year in hospital. Both girls have huge determination to raise awareness and funds to help cure this illness for future generations.

The charity ball is supporting two charities ­ The Cystic Fibrosis Trust, which is the UK’s only national charity dedicated to all aspects of CF. They fund research to treat and cure CF and aim to ensure appropriate clinical care and support for sufferers.

The Southampton Adult Cystic Fibrosis Unit looks after patients from the age of 16 from a very wide area, including Somerset, Wiltshire, Dorset, Sussex, the Isle of Wight, Jersey and Hampshire. Strict cross infection rules mean CF patients often spend long periods of time in hospital isolation, often far from their families. Fundraising helps provide patients with a few “extras” during long hospital stays such as TVs, videos and DVD’s, laptops, fridges and exercise equipment, as well as financing critical medical equipment for the unit if there is no or limited support available within the NHS budget.

Danielle and Debbie are incredibly grateful to have already received sponsorship from the following Companies and would like to thank them: Gold Sponsors:- Silver Lining Convergence Ltd, Ultra Communications Ltd, OneCloud Ltd, Healthcare at Home Ltd, Silver Sponsors: Silver Lining Laboratories Ltd and VIP Table Holders: Orega Ltd and i4retail Ltd.

There are some exclusive VIP Tables available at £1,500 which include champagne, extra wine and a VIP Sponsorship Package. Please contact Debbie and Danielle if you would like to be a sponsor of the event, or to donate an item for the Auction or Raffle whilst generating publicity for your organisation on or call on 0844 826 050. Please visit www.cf-ball.org.uk for more information.

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